Update - June 25, 2008

Well the PET/CT scan went well on Tuesday, Aidan held still and they got good pictures. Daddy promised him a trip to Toys R Us afterwards and he gathered up a few Wall-E toys there.  He was mildly sedated before the scan so he was not able to walk after the test, so after they got back to Tanya’s Aunt and Uncle’s house Aidan went down for a nap.  The doctors wanted Aidan to start on his steroids so some of his tumor symptoms would slow down by decreasing the inflammation in his brain.  After his nap he was back to his old self – personality wise.  He was able to support himself when sitting and his head/neck strength was stronger.  On a trip to Target late in the afternoon today, he begin to lip-sync (still hard to understand him) to an Alvin and the Chipmunk’s song with all the gestures to go along with it.  This cheered his Papa up.

Now for the scan reading today; Dr. Geyer says it is progression with necrosis, the tumor board also determined the same DX.  Aidan will have his first infusion Thursday morning with Avastin.  What is so strange is that there appeared to be no tumor activity wihin Aidan’s brainstem except for the immediate area sorrounding the necrosis.  When you have a diffused glioma, the cancer is peppered throughout the entire brainstem and yet none of the other cancerous cells appear to be progressing.  Aidan’s tumor is doing quirky things, this actually gives us a small glimmer of hope, even though the doctors do not think so.

The family will be returning late tomorrow evening; Aidan is anxiously waiting to see Wall-E and asks us each day when it will be in the theatre.  I plan on picking up tickets Thursday for Friday's premier showing.  So, as you can see, we have some really fun activity planned for Friday.

It is late and I must go - I have a conference call scheduled for 7:00 am sharp tomorrow.

Please say a special prayer for Cooper, Dave, Angie and their families.  We know the numbness they are going through, and our hearts ache with them.  No parent should have to deal with this ugly monster who wins over and over, somebody needs to kick its behind.

 

God bless you all for storming heaven with Prayers in Aidan's honor yesterday and today.  Please continue to pray for that miracle that both Aidan and Cooper deserve.

Cath
Aidan's Nanni

 

Miracles Happen Everyday... Why Not Aidan?

 

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Comments

  • Thursday, June 26. 2008 Billie Reade wrote:
    My heart and prayers are there with you all. I'm sure no one has to tell you how special Aidan is. I really wish that I had more to offer. God tells me to offer my prayers, my heart, and my arms to comfort you all with. Just be assured if any of you ever need anything at all don't hesitate to call on me.
    Love your Sister in Christ,
    Billie Reade
    Reply to this
  • Saturday, June 28. 2008 Juanita Jachetta wrote:
    As a parent of three almost grown children I can not imagine the pain you must be going through for your little boy. I am a social worker and have been blessed to work with children and families for 22 years. I believe in God and miracles through him. I believe he uses his people to bring his gifts to others that are in need. There is a food science company that has amazing products that have changed people's lives, mine included. I challenge you to contact me and simply do your due diligence with this company. What if? What if this is the one thing that you have not tried that could make the difference for Aidan? May God carry you through this most difficult time. Aidan and you family will certainly be in my prayers.
    Reply to this
  • Tuesday, July 01. 2008 aunt min wrote:
    aidan, we miss you very much!! I am looking forward to finally beating you in duck, duck, goose.... so be ready! I love you, and remember we ALWAYS have you,mommy,daddy,sage and now little tallon in our prayers..love ya tators.
    we are trying to find a way to come up to see you and the rest of the crazy gang. hope you have a good day..and remember bud...we love ya!!!
    Reply to this
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