One Week Down - July 3, 2008
Well it has now been one full week since Aidan had started his new chemotherapy (bevacizumab / irinotecan) and steroids. After what had been the darkest of times just one short week ago, Aidan has managed to lift our spirits by using each and every day to improve. His speech is getting better and he is more understandable, his balance is significantly improving, he is no longer seeing double, his swallowing issues have subsided and he is eating foods that he was normally used to eating, his right arm and leg are no longer totally immobile and he is able to walk with assistance and is recovering the use of his right hand. But best of all, Aidan’s good nature and humor have returned and he has managed to make us laugh more than we thought possible under the circumstances.
This new chemotherapy is being taken outside the constraints of a Clinical Trial. We are doing this so that we can try other treatments in addition to this chemotherapy alone. This would not be possible if Aidan was enrolled in the official trial for these drugs. We intend to make this new chemotherapy only the first prong of a multiple prong attack against this Diffuse Intrinsic Pontine Glioma. In addition to the ongoing chemotherapy we are hoping to also treat Aidan with Poly-MVA at the Envita Clinic in Scottsdale, Arizona. Aidan’s first consultation appointment in Scottsdale is currently scheduled for July 14th. If things go well and we are successful in raising a good portion of the necessary funds, we intend to do both of these treatments simultaneously, and in doing so, we believe Aidan will be the first to give this particular approach a try.
For two years Aidan successfully fought off this most cruel of cancers and in doing so he had became a beacon of hope and inspiration to others. We believe this next challenge will be a continuation of that miracle and he will successfully fight this one more time. With a full understanding of the implications of a progression / reoccurrence diagnosis, we will again ignore the odds and confidently march towards Aidan’s miracle. We ask that you continue your prayers and chose to believe with us. Believe that one, two, maybe three years from now Aidan Zaugg will once again be that beacon of hope and show the world that with our Gods help, you can even beat a DIPG progression diagnosis.
With love and thanks for all you are doing to help bring about this miracle,
Aidan's Family
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I am thankful to hear that Aidan is improving. I will continue to pray for healing for Aidan
God Bless,
Margaret
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Happy 4th of July, Zaugg Family!
I'm happy to hear that Aidan has already shown signs of improvement - he is truly an inspiration. I hope he continues to improve each day and that he tolerates this protocol without any nasty side effects. You all continue to be in my thoughts and prayers each day. {{Hugs}} from Michigan!!
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Happy 4th of July, Aidan!!
Keep defying those odds, buddy! I am so elated to hear that things are improving. Let's beat this thing!
In Christ-
Niki Willaert
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Hello,
I started following Aidan's story.
Aidan and the family are in my thoughts and prayers every day.
I just came back from Washington DC with CureSearch to speak to our Senators and Representatives to fund childhood cancer research.
Yes, I do believe with you that Aidan Zaugg will once again be that beacon of hope and show the world that with our Gods help, you can even beat a DIPG progression diagnosis.
Dan Cohen
20560 NE 6 Court
North Miami Beach, Florida 33179
Phone: 305-807-8919
e-mail : danco1968@hotmail.com
www.conquerchildhoodcancer.com
www.thepetitionsite.com/1/CureChildhoodCancer
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So happy to hear of Aidan's improvements. OUr prayers continue each day for all of you! Aidan, you are amazing. Erin, Eric and Max Hanson
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Just a note to let you know you're on my mind. I hope Aidan is still showing signs of improvement and is tolerating the chemo well. My prayers are with all of you.
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Go, Aidan, go! We are praying for you to keep wowing everyone with your improvements and that you are completely healed.
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Tanya, Aidan and Zaugg family, I just wanted to let you know that you guys are in my thoughts and prayers and that our whole brain tumor support group in Seattle are all pulling for you. Why not?
Jen
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Hi Aidan,
Just wanted to say hi, let you know that you are in my thoughts and prayers as always.
Dan Cohen
North Miami Beach, FL
danco1968@hotmail.com
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Aiden I wish you and your family much success with this treatment. I know what you and your family are going through as I just lost my son to DIPG. You are an inspiration that miracles can happen. Keep fighting!
Teresa Kosar
Yonkers, NY
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