A Decision Made - July 23, 2008
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After deep soul searching, and many prayers, the kids have decided to come home. Aidan did not start his Poly-MVA treatments at the Envita Clinic as was originally planned. During the consultation session Tanya & Mike asked several pointed questions concerning the Poly-MVA and the success of the treatments. The Clinic answered all their questions and even prayed with them. The Poly-MVA that they were going to administer had no special additives over what is available over the counter; the only difference is that the Clinic administrates the Poly-MVA by I.V. Envita’s expectations were that they would cure Aidan, yet there seemed to be no evidence that this might be the case. The kids then met with other DIPG families being treated at the Clinic. They had some deep conversations about their feelings, expectations, and experiences. They also discussed the other 3 kids that had DIPG that was treated at the clinic and their realization. Then while in Phoenix two of the children that had been treated at the Clinic passed |
| away. Both were in progression when they came to the Clinic and left the Clinic before their sessions were completed because of the progression. They prayed for clarity and our Lord answered them back, “Take Him Home.” Even with us coaching them to give it a chance, they firmly said no we need to take Aidan home. We told them we loved them and would support any decision they made 100 percent. Their Aunt Debbie and Uncle Sid offered up air miles to bring them home. Aidan has a Chemo infusion scheduled for Monday at Phoenix Children’s Hospital and then they will head home on Tuesday arriving in Pasco about 5:25 pm. This change in plans does not change the need for prayers, donations, and additional treatments. Aidan still has the tumor progression and the kids, Chet, and Aunt Debbie will be searching for something to build his immune system while he undergoes his bi-weekly Chemo treatments in Seattle. The drug is being administrate as an off label use, meaning the drug company does not pick up the cost as would be normal if it were a clinical trial. Progress Update Aidan cheeks have plumped up from the steroids even though he is no longer gaining weight and seems to have stabilized around 50 pounds. His walking has improved and his right hand is making small improvements in movement and strength. Aidan’s speech is still quite mumbled, but with patience we do get the jest of what he is trying to say. Aidan has been begging his parent to come home; he misses his bed, Lucy and Papa. Mike has enjoyed his time with his brother, Anthony, and his family. Mike will be celebrating his Birthday in Arizona this weekend so when you see him be sure and wish him a blessed year with peace and miracles. Tallon is growing and gaining weight and we can’t wait to snuggle up to him. Sage is the best brother in the whole world and always worries about his family before himself. Sage was going to parochial school last year but with the added expenses due to the cancer progression he will be going to public school with his best friend Roger in the fall which he is looking forward to. Tanya is holding up as best as a new mother can with a new baby and a sick child. She is so strong and her faith will carry her through anything. Mike also has a strong faith and between them they will both endure; when one of them has their faith weakened, the other helps to pick up the slack. Hug you loved ones tight tonight, and say a prayer for my family. God Bless You. Aidan's Nanni | |
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Hi there! I am Sage's best friend Roger's mother. We are very sorry that things didn't work out as expected in Arizona. You and your entire family are constantly in our prayers. Roger is very excited about Sage coming home and even more excited about attending school together again. We say special prayer for all of you on a daily basis and will continue to do so. God can create wonderful miracles and we have faith that he will come thru for you and you family.
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i think it is better for you to be close to family and friends than to be away from everyone. i know it was a HARD decision but you made the right one
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