Slowly Improving - September 5, 2008
| Aidan has improved to the point where today he had his very first outing since his latest problems began. He is very much looking forward to the fishing trip that was interrupted with his trip to the hospital, so today we took him shopping for his new fishing pole and reel. After 3 different stores Aidan was unable to locate that perfect rod & reel that meets his very demanding specifications. The shopping experience was highly anticipated, but it did tire him a little, and after the third store it also became a bit frustrating. Realizing the mission must be completed or the fishing trip will have to be put on further hold, Aidan has agreed to give it another go sometime tomorrow morning. Aidan continues to battle the affects of the recent Posterior Reversible Encephalopathy Syndrome (PRES) diagnosis. The seizures have stopped entirely, but he continues to have moments of confusion, fatigue brought upon by the stout medication, and he continues to have interment fairly severe pain due to the internal issues related to his bowels. With the knowledge that all these remaining symptoms are likely to be fully reversible, Tanya & Mike continue to treat him and attempt to make him as comfortable as possible. These efforts have become quite the fulltime job and at times Tanya and Mike really do struggle. The many medications he is now taking all have their own side effects, and Tanya and Mike have learned to become fairly impressive jugglers as they attempt to take him off some of the medications while slowly increasing others. The good news is these efforts do seem to be working and everyday now Aidan seems to be making some improvement. Some further good news, none of Aidan’s current struggles appear directly related to the tumor. They are almost certainly attributable to the PRES and the PRES was brought about by high blood pressures which started because of the steroids. Since the steroids are the root cause of the current problems the obvious goal was to remove the steroids as quickly as could be done safely. The fear in this approach is the steroids are prescribed to keep the tumor symptoms in check, and to reduce them or eliminate them brings on great fear that the tumor symptoms will worsen. Well, even though Aidan was taking 4ml a day when he returned from Scottsdale, and 2ml when he was flown to Seattle, these dosages have been significantly whittled down to only 1/2ml per day and the symptoms have NOT worsened to any degree that would cause us any concern. This has provided further proof that the tumor is currently in check and that the progression of late June early July is not contributing to any of the current problems. We continue to believe that time, support, and prayers will eventually bring about Aidan’s miracle and we continue to ask that you chose to believe with us. Please keep up your prayers for Aidan and continue to thank our God for the miracles he has already received. Aidan's Family |
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Standing with you in complete agreement; praying JESUS "with His Stripes" will heal Aidan - completely restore him from the top of his head to the bottom of his feet in JESUS Holy Name. To God Be The Glory! Amen.
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I was told about your site from Heather and Brian Adams. Just wanted you to know I was very moved by your story and will be praying for you all. God bless!
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I'm not a mother. I can only imagine what any mother of a cancer patient child goes through, and of course pray. I'd like to share a story of my own with Aiden and his family just in case you start to lose hope or faith... I have a cousin who is 13 now. Comes from a good catholic family. He's a great kid, very well behaved and always had straight A's in school, before being taken out for his cancer treatment. He was diagnosed when he was at his fourth stage of Renal cancer and it was already spread throughout his body, in his bone marrow and the doctors said it was innooperable. He then underwent 9 unsuccessful, grueling and miserable rounds of chemotherapy. The doctors decided to try to operate on the tumors behind his eye but decided it was time to tell Mom the grim prognosis. Last week, before his surgery the doctor told Mom that her son was going to die. "Do you want to let him go now, rather than put him this surgery". Of course Mom said she wanted to continue to do everything possible to save her young son. Proceeding with the surgery the surgeon removed two golf ball sized peices of tumor from behind his eye. Although the surgery very successful the Doctors still didn't have much hope. Mom had already emailed make a wish to ask to expedite son's wish for he wouldn't make it through Christmas. Only a few days later.... Family received the results of some testing that was done on the day BEFORE the surgery was performed. These tests show, according to the doctor, that there are no cancer cells to be found anywhere. Of course I can't explain this, even the Doctors are befuddled and my entire family is completely shocked, happy and just overwhelmed with indescribable feelings. From my understanding, every test has been done except for the MRI of his head and we will be intensely waiting for this next week but our family certainly has much more hope now than just a few days ago. When you say your prayers tonight, please remember my 13 year old nephew, Brandon.
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This story gave me chills! God's power is so great that we just have to hang on to the possibilities of miracles. Thank you for sharing your story!
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